tag:blogger.com,1999:blog-5318011581512437125.post4599941123020520690..comments2011-01-14T14:25:37.257-08:00Comments on Diary of Ms X: Sorry, long post...Unknownnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5318011581512437125.post-76630403814210006812007-07-27T11:28:00.000-07:002007-07-27T11:28:00.000-07:00What a terrible thing your GP said to you. It is n...What a terrible thing your GP said to you. It is not true. We don't have a shorter life.It is challenging and frustrating but you are still you.I have been dealing with this since 1988. I was 31 years old and not much was known at the time but it is NOT a life sentence. You may have to do things differently but it the end...you still did it. I use a cane, have to rest when I walk...but I get there. <BR/>Hugs from Cape Cod,<BR/>SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-30431427786957730712007-07-21T06:21:00.000-07:002007-07-21T06:21:00.000-07:00Thanks for all your lovely comments. I've just bee...Thanks for all your lovely comments. I've just been away in the country side with a friend and feel much more relaxed. Although the GP did call me again to say he rang the British Parachute Association and even they said i shouldn't do the jump. I know its in my best interest, i just wish he hadn't caled me to say NO again!! Oh well I wont be running back to him any time soon.see see riderhttps://www.blogger.com/profile/00671769093813177860noreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-25645390073799329502007-07-20T13:21:00.000-07:002007-07-20T13:21:00.000-07:00You're right GPs aren't an expert in MS jooly, I'v...You're right GPs aren't an expert in MS jooly, I've had a headache for at least 100 years now and when i went to the DR and said i know headaches can be a symptom of MS, but how do i tell the difference between a headache and a HEADACHE he told me that MS headaches were rare and MS was generally a pain free condition. I almost kicked him in his precious parts and said and i suppose that doesnt hurt either! I though better of it though cos its hard enough to get an appointment without a restraining order.Candy Canehttps://www.blogger.com/profile/04620383335106996628noreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-24722538147499454962007-07-20T11:21:00.000-07:002007-07-20T11:21:00.000-07:00If your GP said 'most people with MS die young' I ...If your GP said 'most people with MS die young' I hope you will consider reporting the incident to the MS Society. There is not a shred of evidence to support what he said. In fact, all the evidence shows that people with MS enjoy the same life expectancy as everyone else. What you have described sounds like gross medical misconduct to me. Although writing about it on your blog may make you feel better about it, he needs to be challenged formally if he is to be stopped from saying such things to others, less strong than you.<BR/><BR/>GPs are not experts in MS and there is much documentation available from the MS Society to refute what he has said to you.<BR/><BR/>I agree very much with Candy Cane. You need to learn to live with MS, not to fight it. Live well, be happy, find joy. Put your life in context and discover everything that's great about it. MS has taken enough from you, it doesn't deserve all your energy.<BR/><BR/>I'd seriously consider getting a new GP and getting an MS nurse to talk to about MS stuff. That would be a show of strength on your part and a victory. The relationships you have with your medical team are going to be among the most important partnerships in your life.<BR/><BR/>Good luch with it all xJulie Howellhttps://www.blogger.com/profile/02246114692535266775noreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-4262342837423273242007-07-18T08:49:00.000-07:002007-07-18T08:49:00.000-07:00I really don't known what to say see see. What a b...I really don't known what to say see see. What a bummer and you had your little heart set on that sky diving. Eventually you will probably see why your GP had to say no, but not now as you are too angry and you have every right to be.<BR/><BR/>We are all entitled to a little "woe is me" time and rant time - so you let it all out, it will make you feel better!!! And here's a hug to help ((((((((((((((see see)))))))))))Naughty but Nicehttps://www.blogger.com/profile/11373884662113562529noreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-78980957531403602692007-07-18T07:49:00.000-07:002007-07-18T07:49:00.000-07:00I think what helped me in long term acceptance of ...I think what helped me in long term acceptance of my disease was realising that planning things "for when I'm better" (ie not relapsing) was only making me miserable and that accepting I am ill and have limitations and planning with these in mind made my goals suddenly possible. I was achieving things. Yes seemingly pointless to many or it may seem like "giving in" to some, but hey I'm pleasing myself here and not everyone else. <BR/><BR/>But you are right, no matter how far down the acceptance road you wonder, angry days will still happen. <BR/><BR/>you wrote a beautiful entry in your anger.<BR/><BR/>HUGS <BR/>SarahAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-73366359876391423652007-07-18T07:27:00.000-07:002007-07-18T07:27:00.000-07:00yeah, thats coo-poo! the life expectancy for someo...yeah, thats coo-poo! the life expectancy for someone with MS is much the same as everyone else. you arent going to die young sweetheart. <BR/><BR/>the most important thing i learned when i was coming to terms with ms was not to fight it. its a waste of my precious energy. i cant fight ms, it does whatever the hell it likes. all i can do is do my best to get up in the morning, deal with the day i have... be it good or bad... keep myself happy by chatting in JJs, making cards, making jewellary etc etc and keeping going one day at a time. I have MS, MS has my body, but it cant take my personality. YES its changed me for both good and bad, made me stronger and weaker, made me happy and sad.. but thats life<BR/><BR/>i dont believe in staying positive, i believe in staying MECandy Canehttps://www.blogger.com/profile/04620383335106996628noreply@blogger.comtag:blogger.com,1999:blog-5318011581512437125.post-84296852104380968182007-07-18T07:13:00.000-07:002007-07-18T07:13:00.000-07:00(((((((((((((((((((see see))))))))))))))) what a H...(((((((((((((((((((see see))))))))))))))) what a HORRIBLE gp...is there anyone else you can change to?<BR/><BR/>Incidentally he gives the impression of knowing sod all about MS...most people with MS do NOT die young!Wednesday Addamshttps://www.blogger.com/profile/04410436728731865267noreply@blogger.com