I have a hospital appointment tomorrow - to see about possibly going on disease modifiers (Avonex, Betaferon, that sort of stuff). Not really sure what I want the result to be. On the one hand it would be good if the doctor says yes, you're suitable, off you go - hopefully they would work for me and reduce the progression. On the other hand, it would also be quite nice if he said sorry you're not suitable - I wouldn't have to face a future of injecting myself on a regular basis! I know I'd get used to it if I had to...can't say I'm thrilled at the prospect though!
Will keep you updated on developments...
7 comments:
Not sure I'd like it either wednesday. Doctors have taken so long to discuss drugs with me i think if they offered it to me now I would refuse. I've been progressing so well on my own, I think I'd rather keep it that way. Also i can't think how easy it can be considering the amount of times nurses and doctors get it wrong in the hospital!
I've been on Rebif since Feb 20 and I do generally think that I feel better as far as relapses go, However the fatigue is something else and I havent been able to get back to work either since opitical Neritos started last Christmas so I'm really fed up. Eventhough the thought of jabs initially made me very scared and I wondered if I could do them, I have and will continue. Good luck.
I was on rebif for 2 years or so Wednesday and I can't really say whether it helped or not, I still progressed while on it, but would I have progressed faster or slower if I'd not been on it it's a catch22 situation.
You do get used to the injections especially if u use the auto injector pen thingy - although I have to admit I am glad I am no longer doing them!!!
Just a little prick!
Just a little prick with a needle...Yes doctor, but what are you going to do with it?
bend over and i'll show you
I've been on Betaseron since 1999. Needles were not my thing either, but I decided take the opportunity to indulge my cravings for dark chocolate or wine, prancing around the apartment in heels I'd never wear outside, bubble baths and music, allowing myself to sit like a zombie in front of a television show it takes exactly one brain cell to watch, and other assorted treats—from the naughty, to the snow white. The moral of the long-winded story: if I really don't want to do an injection on a particular night I reward myself with something wicked and fun.
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